P4KR is collecting demographic information that will be used to support research to develop new treatments and to improve the quality of life for children with Krabbe's Disease and their families.
If you have not already contributed data or your information has changed (i.e. mailing address, email address, etc.), please consider participating.
This study is a worldwide study. Anyone in any country can participate.
Thank you for submitting your information.
- Anne Rugari