In 2015, a Brain and Tissue Biorepository was established at the University of Pittsburgh to further the research of Krabbe Disease.

In September of this year, Partners For Krabbe Research donated $10,000 to the Children's Foundation for Neurodegenerative Disorders (CFND) which is under the direction of Dr. Maria Escolar.  These donated funds will be used to support the Biorepository Brain and Tissue Bank for research of Krabbe Disease.  

More information will be coming soon on how you can donate your child's brain and tissues to further advance research for Krabbe Disease.  If you are interested in donating your child's brain and tissues, or to find out more about the Brain and Tissue Biorepository for Krabbe Disease, please email us at: